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Short and long term quality of life after reconstruction of bladder exstrophy in infancy: preliminary results of the QUALEX Study (Abstract)

Sandy Jochault-Ritz¹, Mariette Mercier², Didier Aubert¹

¹ Saint-Jacques University Hospital, 2, Place Saint Jacques, 25030 Besançon Cedex -France

² EA 3181, University of Franche-Comté, 25030 Besançon Cedex - France



Objective: To assess quality of life of patients born with bladder exstrophy (BE) and reconstructed during early childhood in 7 French University Hospital (QUALEX study).

Methods: Patients from 6 to 42 years-old answered self administered SF-36, VSP-A, VSP-AE AUQIE and general questionnaires about functional and socioeconomic data. Dimension scores were compared between adults and adolescents using SF-36 and VSP-AE. Scores were also compared to the general French population.

Results: Among the 134 eligible patients, 36 adults, 18 adolescents and 17 children answered the questionnaire. There was no difference between responders and non-responders in terms of reconstruction criteria. Continence was achieved in 77% of adults, 65% of adolescents and 12% of children. Adolescent QOL was globally superior to adults and children. Adult QOL was globally lower than the general population except on the physical dimension. Children’s QOL was also globally lower than the general population except for relations with family and school work. Adolescents’ scores on SF-36 were superior to the general population, but lower on half of the dimensions with VSP-AE.

Conclusion: Patients presenting with reconstructed BE have impaired quality of life and functional results seem to be the most likely predictive factor of HRQOL score.

Key words: Exstrophy,Quality of life.Long term outcome.Continence,Sexuality


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